Emma Heming Willis on Bruce’s Health Challenges

Emma Heming Willis noticed something was off with her husband, Bruce Willis, and initially thought it was a result of his hearing loss from filming “Die Hard.” The former model recently published a book titled “Unexpected Journey: Find strength, hope and self on the path of caregiving.” The book dives into her personal experience caring for Bruce, who has been diagnosed with frontotemporal dementia (FTD), and aims to be a guide for new caregivers.

She shared with Fox News Digital that during the filming of “Die Hard,” Bruce shot multiple scenes without ear protection, leading to significant hearing loss over time. “I thought that was the issue,” Emma reflected. “Perhaps we misinterpreted his struggles with listening as a hearing problem.”

Emma recalled, “When we first met before we married in 2009, his hearing wasn’t a major concern. Yet, I began to notice changes in our dinners—he seemed distant.” She humorously added that at times, Bruce would engage in “Yak It Up” and “Girl Talk” with his older daughters, perhaps missing out on conversations with her.

She also noted that Bruce had lost considerable hearing in one ear after filming “Die Hard” and seemed to zone out during conversations. “I thought maybe it was the hearing loss causing him to withdraw,” she admitted. However, deep down, she began to sense that something was deeply wrong.

At first glance, Bruce appeared healthy, and doctors found nothing alarming. But Emma trusted her instincts and sought advice from his physician. “We know our loved ones better than anyone else,” she encouraged other caregivers. “If you sense something’s off, don’t hesitate to speak up.”

In 2022, Bruce’s family shared his diagnosis of aphasia, a condition affecting his speech. Scary moments followed as, almost a year later, they announced a more specific diagnosis of frontotemporal dementia.

This condition, according to the Frontotemporal Degeneration Association, impacts behavior, language, and movement. It tends to affect individuals aged 45-64, with an average life expectancy of 7-13 years following the onset of symptoms. Emma described it as a devastating reality but aims to find moments of joy amidst the struggle.

Emma expressed her love for Bruce and hopes that sharing their journey helps others feel less isolated. “I want him to feel cared for in this next chapter. Every day can be a challenge, but it’s also filled with small joys.” She’s determined to embrace each moment, reminding caregivers that it’s indeed possible to find laughter and light amid adversity.

As Bruce remains present in his own way, spending time with family and enjoying life, Emma emphasizes the importance of being fully engaged in the present. “Holding his hand, laughing together… our journey continues.”

Emma concludes, “It’s a long road, and I’m still learning, but I’m committed to making the most out of every day.”