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Forgotten and neglected: Without federal assistance, those with brain injuries will be overlooked

Forgotten and neglected: Without federal assistance, those with brain injuries will be overlooked

Unlike fractures, brain damage often goes unnoticed.

It’s hard to see cognitive difficulties, memory loss, or ongoing pain. For millions of Americans dealing with brain damage, the effects are deeply felt every day. Rebuilding life, relationships, and futures becomes a daily routine.

A federal program has helped ease this journey somewhat, but now that support faces significant threats.

Recent budget proposals show alarming reductions to health programs, with plans to cut almost all federal support for brain damage initiatives, according to leaked documents from the management and budget department.

Decades of efforts in prevention and treatment could vanish with a few signatures. These programs are not unnecessary expenditures; they represent crucial investments in the lives of those with brain damage.

The proposed cuts would dismantle the Centers for Disease Control and Prevention’s Heads Up program, which trains coaches, parents, and athletes in concussion recognition to prevent lasting harm. It would also disrupt the model system for traumatic brain injury, which has set the standard for care and recovery. Additionally, it would halt the collection of crucial data about injury occurrences and risks, effectively erasing the national concussion surveillance system.

Cuts to these programs create risks for everyone. For instance, teenage football players may face a preventable second concussion due to a lack of proper guidelines. Veterans suffering from explosive injuries could lose access to specialists trained in cognitive rehabilitation. Families already stretched thin due to caregiving responsibilities risk losing crucial support that helps their loved ones live independently.

Brain damage affects more people than many realize—about 64 million Americans will experience at least one traumatic brain injury (TBI) in their lifetime, along with many who suffer from other types of brain injuries like strokes and aneurysms.

Federal funding for brain injury care and research remains minimal. In 2024, TBI research funding was roughly estimated at $194 million, or about $3.03 per affected person. This figure is dwarfed by the estimated $76.5 billion annual cost of TBI in the U.S., which includes expenses for emergency care and lost productivity.

Reducing funding for these programs is not just a budgetary decision; it’s a public health failure.

The elimination of major programs like Heads Up, the National Concussion Surveillance System, and the Core State Wirnic Prevention Program threatens to undo decades of advancements. These cuts risk a future where more people suffer from brain damage without the necessary support. It’s unrealistic to expect that states can shoulder the financial burden on their own.

This isn’t merely a political issue.

For years, brain injury programs have enjoyed bipartisan support, as their importance is universally acknowledged. Brain injuries affect individuals regardless of party affiliation, race, income, or geography, stemming from events like slips on ice, athletic collisions, car crashes, or combat-related blasts.

It’s vital to recognize brain damage as a chronic health condition. Many survivors face ongoing challenges such as memory issues, depression, behavioral changes, and physical disabilities, which can affect their work, research, and personal connections. Additionally, brain damage significantly raises the risk of serious conditions later in life, such as Parkinson’s and Alzheimer’s diseases.

Without continuous research, education, and community support, many survivors could fall through the cracks. The proposed cuts to federal brain injury programs would worsen public health crises and strip away hope from those who need it the most.

The American Brain Injury Association is urging Robert F. Kennedy Jr., the Secretary of Health and Human Services, to reconsider these plans. We are calling on Congress to oppose these drastic funding cuts.

Investing in brain injury services and research is essential for fulfilling America’s commitment to protecting lives and caring for its most vulnerable citizens. This promise was established decades ago with the founding of key programs that are crucial today. It cannot be allowed to falter now, when so many lives hang in the balance.

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