Imagine waking up after years of suffering and suffering with a seizure.
For 17-year-old Clara Fuller, this dream has become a reality thanks to groundbreaking brain implant techniques.
Her journey from a ruthless seizure to a normal teenage life highlights the incredible potential of medical innovation.
Brain implant patient Clara Fler (Neuron)
Life has turned upside down
At just 13 years old, Clara began experiencing uncontrollable seizures that confuse the doctor. Initially, she was misdiagnosed as an anxiety and gallbladder problem, so before doctors could finally identify epilepsy, the actual perpetrator, she underwent unnecessary surgery. But this wasn't just an epilepsy. Clara had multifocal epilepsy. This is a rare and severe form of resisting all drugs.
“Every night I'd have up to 10 seizures, and it was just miserable,” Clara said.
Her adolescence was marked by sleepless nights and constant medical challenges, depriving her of the simple joy of being a teenager. For years, no solution was found.
Brain implant patient Clara Fler (Neuron)
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Innovative solutions
Everything changed this summer when Clara became the first pediatric patient to receive minimal invasive procedures at Mayo Clinic using Neurone's cutting-edge brain implant technology. Device known as Neuroone Onerf Ablation SystemIt is the first technology of this kind of FDA clear technology, designed for both the diagnosis and treatment of neurological disorders in one step.
“It probably took 30 minutes and the longest part was set,” Clara said of the steps that changed her life.
Dr. Bryn Freund, a neurologist at Mayo Clinic in Jacksonville, Florida, described Clara's case in more detail.
“Clara has a history of seizures and unfortunately was controlled by drugs. In these cases, surgery may be the only option to reduce seizure disorders and potentially treat them. After a thorough diagnostic evaluation, our group in Florida recommended developmental or stereoelectrogrography in brain developmental clinics, and plans to treat them.
“Clara and her family were very much in agreement with this plan given how debilitating her seizures were and how uncontrollable they had no control over drug-induced seizures. Clara underwent a neural electrode implantation to determine where they would potentially treat by performing radiation in these areas to record seizure activity and determine where they would arise from where the seizure occurred.”
Brain implant patient Clara Fler (Neuron)
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How the Dual Function System of Neurone
The nervous system uses ultra-thin electrodes to identify the exact cause of seizures in the brain. Once identified, it uses radio frequency energy to destroy abnormal electrical signals in problematic brain tissue without permanently damaging surrounding areas. This dual function of diagnosis and treatment is different from traditional methods that require two separate surgeries.
Neuroone CEO Dave Rosa explained:
“What separates our technology from other technologies is that our devices can be used for both diagnostic parts (finding areas of the brain), and all of which remove or destroy that tissue in the same hospital.”
He added that this approach will minimize the risk to patients by reducing the required procedures and hospitalizations.
Freund highlighted this advantage.
“StereoEEG electrodes provide the ability to localize the onset of seizures with excellent accuracy as long as the implantation of the electrode is thoroughly and accurately planned. With regard to the Neurone electrode, not only remove the electrodes, but also remove the electrodes, but also confine the electrodes, as well as confine the electrodes. Or invasive procedures such as craniotomy and resection of brain tissue.
“Neural electrodes allow you to control the conditions of the ablation procedure and provide more confidence that the electrodes can withstand the duration of implantation.
Brain implant patient Clara Fler (Neuron)
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result
The outcome is nothing but life-changing for Clara. She had never had any seizures since going through the procedure. She's now back to enjoying school, sports and uninterrupted sleep. Most people take it for granted, but it was never imagined for her in the past.
According to Freund:
“In regards to the transplant itself, she did very well and had no adverse effects. The initial ablation did not cause any acute complications. Then, a second ablation was performed a few days later, after which data was recorded from the electrode demonstrating ongoing seizure activity to ensure that the seizure did not recur, and then a second ablation was performed a few days later.
Clara's story offers hope for others living with drug-resistant epilepsy. This affects about a third of the 3 million Americans with epilepsy. According to Rosa, “The desire to expand ablation therapy to patients suffering from seizures that do not respond to drug therapy was what motivated us.”
Neuroone One RF Ablation System (Neuron)
Broader impact on drugs
Neurone's innovative technology is not only limited to epileptic treatment. The company plans to use the same RF ablation technology to expand its applications to other areas, such as managing pain for facial and back pain. Rosa also sees the potential to treat neurological conditions beyond epilepsy.
“Pain management appears to be the biggest opportunity other than brain removal.”
Dr. Freund believes that the technology can dramatically improve long-term care for pediatric epilepsy patients like Clara.
“This technique can limit the number of steps required to treat drug-resistant local epilepsy and also provide immediate feedback on whether surgical treatment is effective. This can reduce the risk of adverse events by limiting the time required for brain surgery.
He added that the impact could soon spread:
“In our practice, we use these electrodes in any case where stereo EEG is required to treat drug-resistant epilepsy. I don't think there's a reason not to use them because these types of electrodes are used in more centers and get more experience.”
Neuroone One RF Ablation System (Neuron)
Important takeouts in your cart
Clara's incredible journey from life suffering from seizures to one of freedom and normalcy highlights how advances in medical technology are changing lives in profound ways. Her story gives hope to those suffering from drug-resistant epilepsy and other neurological conditions.
As technology continues to push boundaries, we can expect even more groundbreaking treatments to emerge, offering new possibilities for those who once felt limited to their own conditions. In the words of Neuroone's CEO, this innovative technology promises a future where there are fewer surgeries and safer outcomes will become the norm.
If you or someone nearby have epilepsy, would you consider trying such an innovative treatment? Why or why? Write us and let us know cyberguy.com/contact.
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