Jesy Nelson, formerly of X Factor and Little Mix, recently opened up about her twin daughters’ serious health diagnosis, which has been quite difficult for her. In an emotional Instagram video, she shared that Ocean Jade and Story Monroe Nelson Foster, born prematurely in May with musician Zion Foster, have been diagnosed with spinal muscular atrophy (SMA), a rare genetic condition she called “the most severe muscle disease.”
She expressed her concerns when the twins weren’t moving their legs as expected and had difficulties breastfeeding. After months of testing, the diagnosis of SMA type 1 came through. “After a tough few months filled with medical examinations, we learned that the girls have this severe muscle disease,” Nelson explained.
This condition progressively weakens the body’s muscles, and if timely treatment isn’t received, it could significantly shorten life expectancy, potentially to just two years. Nelson shared that doctors told her at London’s Great Ormond Street Hospital that her daughters might “never walk” and would likely face disabilities.
However, she mentioned that the twins have started receiving treatment, which she found life-saving. “I was so grateful,” she shared, acknowledging that without treatment, their lives would be at risk.
One of her daughters even required a ventilator as part of her intervention. Reflecting on the last three months, she stated it has been one of the most heartbreaking periods of her life, describing it as a complete upheaval. Despite the challenging diagnosis, Nelson remains hopeful, believing her daughters will “defy all odds” and fight their condition with the right support. She wants to raise awareness, hoping that sharing their journey helps other children receive prompt diagnoses.
In a touching moment, Foster posted a happy photo of the twins on social media, stating, “Keep smiling no matter what. Daddy loves you so much.” It’s worth noting that Nelson faced a rare pregnancy complication which led to her giving birth at 31 weeks. SMA, if untreated, can lead to severe muscle wasting and potentially death within two years. The NHS approved Zolgensma, a gene therapy, in 2021, which is believed to be most effective when administered early.
