NHS error meant hundreds of parents did not know children’s sickle cell status | Sickle cell disease
NHS mistakes have left hundreds of Afro-Caribbean families unsure whether their babies may be carriers for certain inherited blood disorders. This was revealed by the Guardian newspaper. More than 800 families in Derbyshire have not been sent the results of a heel prick test performed on their baby after birth. That means they didn't know […]
Ex-NFL star Tevin Coleman’s daughter ‘couldn’t breathe on her own,’ put on ventilator amid sickle cell fight
Former NFL running back Tevin Coleman and his wife Akira Coleman have shared a heartbreaking health update about their daughter Nazaneen. The Colemans revealed in a video posted on social media Tuesday that the 6-year-old boy has sickle cell disease and was recently put on a ventilator. The video showed Nazaneen spending time with her […]
FDA approves sickle cell disease treatment that uses ‘remarkable’ gene-editing technology
Modern medicine is one step closer to a possible cure for sickle cell disease. Following the UK's approval of the world's first gene-editing treatment for sickle cell disease on November 16th, the US Food and Drug Administration (FDA) also approved the same treatment on December 8th. “FDA approval of CASGEVY is extremely important,” said Reshma […]
FDA appears poised to approve sickle cell gene therapy
The medicine uses gene editing technology Developed through a collaboration between Vertex Pharmaceuticals and CRISPR Therapeutics. The FDA’s Cell, Tissue, and Gene Therapy Advisory Committee did not vote at Tuesday’s meeting, but positive discussions likely indicate the agency will make a favorable decision. “I think the benefits far outweigh the risks, especially when you consider […]
